I’m convinced patience and positivity saved my life. I don’t believe I would have gotten through my two-month hospital stay without it.
It has equal importance to me now, as this long haul stuff is no joke. I work hard to continue to look on the positive side of things. My lungs are improving. At my most recent pulmonologist visit, he said they are now at 80%. The weekly laser treatments I am having on my lungs is helping. I still feel a heaviness across my chest and at times have difficulty breathing, but not as often as before. For this I am grateful.
I stay patient, as what isn’t improving is my overwhelming fatigue and the issues with my brain. Each morning I wake up early and work on my writing, then I pace myself with a thirty-minute walk, then exercise, and then finishing with yoga. Yoga has been amazing for both my breathing and my demeanor. Stacey, my former assistant at Jackson Whole Grocer, teaches me by Zoom each week. I use what I’m learning from her throughout the rest of the week.
Being outside with my music blasting, while pushing myself with physical activity makes me feel alive.
The fatigue starts to become overwhelming around lunch time and lasts throughout the rest of the day. Early each afternoon, I need a nap, which lasts anywhere from 20 minutes to an hour. The fatigue is like nothing I have ever experienced before. On the days I don’t get a nap, by evening I often can barely even function. The situation with my brain is taking a lot to get used to. Being Shelly’s caregiver for nearly ten years, we are seeing many similarities to her traumatic brain injury. I often do not remember what just happened or what I was on track to do. I can’t multitask and often get overwhelmed with the simplest of tasks. My brain’s ability to process is a shell of what it was prior to getting sick. I have my first appointment with a neurologist tomorrow. It’s funny how in my new situation, I get very excited about certain doctor appointments. I’m hopeful to get some insight from that appointment. I’m still not working. With the fatigue and the cognitive issues, it would be very difficult to. I refuse to worry about how that all turns out and what the future will look like. I can’t waste any time on thoughts that aren’t productive. In the past, my nature was always to dwell on things and imagine the worst. I’m proud of myself for not going down that path anymore. We will make the best of whatever is next. My first book has been written. My publisher and I just went through a round with the grammar editor, and it’s now with the final proofer. Over the past couple of weeks my publisher, myself and family have been brainstorming for the title and subtitle. This process of writing this book over the past four years has done wonders for the continued development of my patience. I feel like in many ways, Shelly and I are closer than ever. Adversity has a way of strengthening us. This experience has been so difficult on us both. It was a living hell for her when she was also sick while dealing with my hospitalization and my insane fight for life. Her strength continues to amaze me. It has taken a lot of adjustment to be off work and to be reliant on her for many things she had been reliant on me for. But between the two of us we try to keep it fun and light, while managing to get things figured out. Recently I found myself still fidgeting often with the computer and phone. One day it occurred to me how ridiculous this was. I now work to minimize my screen time, which feels like an important goal to help my fatigue, my brain, and my overall wellness. Being away from work, I currently don’t talk to very many people. Many years ago, I learned that it always is a little surprising who stands by you during crisis. The past several months has been no different, and I am so grateful for the handful that have stayed close. “One day at a time” may be a cliché, but it sure does fit.
Often when things are moving along smoothly, something can come and knock us to the ground.
Becoming well versed in grief in my early twenties set the tone for having a unique perspective on how I have looked at things ever since.
I’ve always processed and handled the heavy things in life through music. There’s a lyric in a new song by Arcade Fire, “Unconditional 1 (Lookout Kid)”, that has stood out to me, as I think about it often.
“A lifetime of skinned knees
And heartbreak comes so easy
But a life without pain would be boring.”
https://www.youtube.com/watch?v=cMzPLclqLl4
I used to look with envy at those living a life without earth shattering pain. We’re programmed that pain is an awful thing, but in recent years, my perspective has changed. I’ve become aware that pain has allowed me to become empathetic, understanding, and grateful, while there’s little that I take for granted.
Older and wiser, I think about each difficult, life-changing experience and how each previous experience has helped me get through the new challenge at hand.
I don’t believe I would have survived my recent near-death Covid experience without my previous resilience to pull inspiration and strength from.
In the years since I started writing about the lessons I learned from my adversity, I’ve been able to connect with and help people. This, in turn, has helped me. I used to feel nobody wanted to hear about what I had been through. To continually see examples of this not being the case has been life changing.
For me, the ultimate power has been in the strength of connection.
A newfound connection with others, as well as with myself.
I feel peace at last, as I no longer have anything to prove, nor feel the need to impress anyone.
I face each day giving thanks to God for allowing me to be alive, here with my family and those closest to me. I’m blessed that my days are filled with positivity and patience as I work on healing.
I’m extending my leave from work until later in the year, as I deal with respiratory and cognitive issues from long-haul covid. At this point, nobody really knows the long-term ramifications of this disease. My lungs continue to heal, but I still have issues with breathing and my chest often feels heavy. The chronic fatigue and brain fog is still intense. I take a nap most afternoons and I have real issues with both multi-tasking and my short-term memory. I will be seeing a neurologist soon to address these issues.
But I honestly don’t worry about anything. Through exercise, diet, yoga, and gratitude, I put out my best possible effort towards healing every day. Gratefully, the peace I have found and the perspective of all that I have previously gone through allows me to accept whatever comes next.
One thing for certain is that life will continue not to be boring.
“That people’s memories are maybe the fuel they burn to stay alive. Whether those memories have any actual importance or not, it doesn’t matter as far as the maintenance of life is concerned. They’re all just fuel. To the fire, they’re nothing but scraps of paper. It’s the exact same thing. Important memories, not-so-important memories, totally useless memories; there’s no distinction-they’re all just fuel.”
-Haruki Murakami, After Dark
One of my favorite singers, Wes Eisold of the modern day goth band, Cold Cave, posted this quote by Japanese novelist, Haruki Murakami, last week.
53 days in a hospital bed where I never had the strength nor lung capacity to even take a single shower in that time. The use of high flow oxygen and high-powered drugs helped keep me alive. But my positivity, patience, zero fear and my quest to keep the negativity away also helped me to survive.
When I think about this quote, it helps me connect what a strong part my memories played in living.
I heard from dozens of people during this saga. Many of them I was reconnecting with for the first time in many years. The common thread to all these conversations was that we talked about things that had happened in the past. Good times, bad times, times I felt the need to apologize for; it didn’t matter as the memories were keeping me moving forward. I thought of things I hadn’t thought of in decades. I’m sure it often made no sense why I was even bringing some of these memories up.
I literally listened to music non-stop the entire time I was hospitalized. For years I have said that music is my therapy and I’ve heard it said that music is one of the keys to unlocking your brain’s deepest memories. Music serves as a soundtrack for a mental movie that plays in our head.
Well, that movie played non-stop throughout my entire hospitalization.
Music kick-started thousands upon thousands of memories that ranged anywhere from the previous week to fifty years earlier. It allowed me to savor what a complicated, painful, yet good life I have had. I quickly understood that if my life was ending, that was okay, as I could truly say that I’d lived it to the fullest. But the gravitation to memories generated the understanding that it sure was a life worth fighting for it to continue.
So, fight is what I did.
I stayed in this positive state of recollection the entire time I was in that hospital bed.
I’d tell stories to any staff that entered my room, or with any friends that visited, called, or texted with me, especially appreciating those that actively engaged in the trips down memory lane with me.
Crazy, it all must have seemed.
But there was much more to it, as these memories were the scraps of paper for the fuel that was keeping me alive.
Half a year ago today I was admitted to the hospital, struggling to breathe.
It didn’t take long to realize that I was in a fight for my life.
I could have died, but I lived.
I stayed positive. I stayed patient. I allowed no negativity near me. I had zero fear, and I kept the music playing twenty-four hours a day.
My Mantra. Graphics by Dylan.
I gained strength by not fearing death, and by fighting for more days with Shelly, Dylan, and Taylor.
I fed off the positive energy of staying close to my wide network of friends.
I knew I’d made it through life-changing adversity before, I had the confidence that I could do it again.
This approach helped me to live.
Six months later I am far improved, but still sick. I’m what they call a long hauler.
It’s not easy. The fatigue is like nothing I have ever experienced. I still cough, grasp for breath, and lose my voice multiple times a day, while my heart and lungs still oftentimes palpitate uncontrollably.
But I stay positive, and I thank God many times each day for still being alive.
These last six months have aged my body considerably, so I am working with exercise and eating right to help counterbalance the damage that’s been done.
I’m enjoying exercise more now than at any point of my life, and I’m excited to have just added yoga to my routine.
Lately I am in a place of quiet reflection, with a patient determination towards recovery. I have taken a short leave from work, so it’s a rare point of my life where I am not talking to many people through the day. My inner circle is smaller, closer, and tighter than it has been in years.
I struggle to multitask, and my short-term memory has issues, but my mental clarity towards healing is steady, determined, and well-focused.
I’m making sure to do those things that I love to do, but at a slower, healthy pace.
Half a year.
A whole new perspective.
I’m ready and grateful for what tomorrow will bring.
I am gradually improving, but I still do have a ways to go with this long haul type of stuff.
I’m in my first month of a short term leave from work. I’m taking the time to totally focus on healing. It took adjusting to, but it has been good for me. I’m blessed that James (a loan officer friend from my office), his team and my team are taking good care of my clients for me during this period.
My biggest struggles are respiratory. I hyperventilate, which is rapid heart and lung palpitations where I get short of breath and struggle to talk. I’m happy that my coughing episodes aren’t as often, but they still are intense.
Shelly & I celebrating our 28th anniversary
The fatigue is crazy. I try to take a nap every afternoon (or I get grouchy) and I need to get to bed early (and I am up early). Brain fog is still there as I do struggle to remember things and multitask.
My visits to the cardiologist shows nothing too worrisome with the heart! Just a murmur. That’s a relief because my heart has felt weak ever since I got sick.
I see the pulmonologist regularly and he says it’s not going as quick as he’d like, but he says to keep doing what I am doing and he’s hopeful for more sizable improvements soon. He admits that there’s still little known about long term effects.
I’m enjoying exercising everyday in the sun and it seems to be helping a lot, as I am building back strength.
I’m trying to focus on the small wins and making sure to do what I love to do.
I have been going to Coachella with my oldest son, Dylan since he was 11 in 2007. I worked hard to train and prepare to make it there for our 11th time.
We made it! I paced myself while there and it was amazing.
I was able to tell him that I was recently hospitalized for 53 days with COVID Pneumonia, and while fighting for my life I listened to his music 24 hours a day.
He was visible touched, saying, “Oh my God”, while putting his fist to his heart. He then said, “thank you”, while giving me the thumbs up.
I still can’t believe Dylan’s girlfriend, Ashley, got this perfect picture!
Expressing my appreciation to Morrissey.
Last weekend Shelly and I celebrated our 28th wedding anniversary. It seemed extra special, as I have such gratitude for being alive and able to celebrate.
We just got home from California with our pups. On this trip, I may have tried to do too much, but I do live & learn as I go. It was great seeing our son Taylor and his girlfriend Michelle (and the ocean). Last time I saw them was through my hospital window when I was fighting for my life.
Staying focused and positive is continuing to help me.
Grateful for life…one day at a time.
Celebrating at Coachella with Ashley and Dylan.Last time I had seen Taylor was through my hospital window.
Music has always been a tremendous part of my being. I gather such clarity and hope from it. On my first night at the hospital, I listened to a podcast. Halfway through I realized that I didn’t need that kind of noise from the outside. I turned it off and turned on The Smiths through Spotify. I listened to their entire catalog of songs over the next several hours. I was calm, confident, and focused. I realized to get to the other side of this I needed music by my side twenty-four hours a day, so I cut out all television and vowed to stay away from any possible negativity.
A “Queen Is Dead” poster was in my 1988 college dorm room.
This focus on positivity and music began serving me well. I was inspiring the medical staff and they were inspiring me. My positive focus centered on kindness and appreciation towards the medical team. This positive energy began feeding off itself; creating a momentum of hope that’s hard to describe.
My chance at survival was not good. But from day one I wouldn’t let any discussion of that enter my hospital room or enter my head, keeping to my attitude of positivity, patience, no negativity and zero fear.
Over those next 53 days, I listened to The Smiths far more than any other artist. This band has been so important to me for nearly forty years. From Manchester, UK, they were only in existence from 1982 to 1987, but they revolutionized alternative music with their four groundbreaking albums. They shocked the world by breaking up while so young and on top of the music world.
While hospitalized, Morrissey, through both his work with The Smiths and his solo material, spoke to me more than any other singer. With his beautiful baritone voice and his raw, real, and vulnerable lyrics, I’d get lost in the concentration of hanging onto every word. The witty poetic turmoil and self-reflection within his lyrics has always resonated with me, as I have constantly questioned and been suspicious of the motives of authority. There were instances where I put his deep catalog on shuffle and listened solely to Morrissey for more than twenty-four hours straight.
Over the past several years I’ve been writing; telling my personal story of emotional recovery and resilience from much adversity. I lost my fiancé at a young age. Struggling for years after that, I then fell in love and married a valued and trusted friend, which alienated people close to us. Climbing to the top of the grocery world, only to lose it all due to my hard ass ways. With that, millions of dollars were lost. Then rising in the mortgage business, only to lose everything in the crash. Things got so bad I secretly drove a cab overnight through the rough streets of Phoenix. This changed me into a more empathetic human. For work, we left Phoenix for Jackson Hole, Wyoming. The reinvented me became the popular local grocer and I created a radio show with my oldest son, Dylan. Then life came crashing down again with Shelly’s brain injury. I became Shelly’s caregiver, and I continued my evolution for the better as I drew much strength and empathy from her grit and grace. We just celebrated our 28th wedding anniversary yesterday.
The day they took me outside the hospital with Shelly.
If I could get through all of that, I knew I could get through this. But I would need to do so on my terms which consisted of drawing strength and confidence from my wide network of friends and family and by turning the music up and never turning it off.
At one point, the drugs were so strong I was teetering on losing my mind. On Christmas Day someone suggested to Shelly that she take my phone away. That irritated Shelly, as she told that person that without my phone I would lose my music, and without my music I would die.
As horrifying as this ride may have been at times, I pulled through and I am alive. Music gets big credit for my survival. With music playing such a large role, the musician that by far helped me the most was Morrissey.
My son Dylan shares by deep passion for music. I’ve been taking him to the Coachella Music and Arts Festival since he was 11 in 2007. Making it to our 11th Coachella became a huge driving goal of mine. I first discussed this goal when my oxygen levels were still dangerously dropping into the 50’s and I couldn’t even walk to the end of the bed without troubles.
Over the next months I trained hard everyday with the goal of making it to Coachella in April. In recent years Coachella became even more meaningful as Dylan became a featured artist with Global Inheritance’s TRASHedCoachella art exhibit at the festival. 2022 was to be Dylan’s 2nd year as a featured artist. Dylan is a successful graphic designer and so much of his style and vibe has been inspired from those sun-soaked days we’ve spent on the grounds of Coachella.
I was determined that it would take much more than this setback to keep me from our 11th Coachella.
Dylan & I at Coachella with his “Desert Cabana”.
As I basked in a celebratory beer with Dylan and his girlfriend Ashley, on day one at the festival; Ashley excitedly said, “Oh, we meant to tell you that we just saw that Morrissey is coming to Phoenix SOON”. I instantly looked it up on my phone and said, “Wow, at the Orpheum on May 10th, we’ll be there!”
Although challenging at times, I took it slow and easy in conquering Coachella. Once home, my attention shifted to seeing Morrissey in a few weeks. I wasted no time in buying prime tickets in the raised ADA row of what was called the “orchestra section”. I am still have a ways to go and am struggling with many long-Covid related issues, especially the later it gets into the day, so I knew these seats would be perfect for us.
In the days leading up to the show, I solely played The Smiths and Morrissey loudly as I exercised in my backyard. It felt so appropriate that I’d soon be seeing the one that had such a role in helping me to survive.
The night of the show I picked Ashley and Dylan up early as I wanted to make sure to get downtown to eat and not miss a thing for my first visit to the renowned Orpheum Theatre, which first opened in 1929. We settled on a quick dinner at a Thai restaurant down the block from the theatre. As we sat and talked over a beer, I confessed that I was nervous. I explained that I felt like something out of the ordinary was going to happen tonight.
Settled comfortably in our seats, we jumped up quickly as the show began with a solo song he hadn’t performed live since 1992, “We Hate It When Our Friends Become Successful”.
Dylan & Ashley waiting to see Morrissey.
What a show it was! Morrissey was in a fantastic mood. It was the first performance for him and his band since September of last year. The set was filled with rarities and songs that hadn’t played live in many years. On the seventh song of the night, I had goosebumps and the tears flowed when he played the poignant “Never Had No One Ever” one of my favorite songs off of “The Queen Is Dead”, my favorite Smiths album. I later learned that it was only the eighth time he’d ever played that song live.
Here’s a video I took of that song….
https://www.youtube.com/watch?v=J3IZloGiEqk
My video of “Never Had No One Ever”.
Later in the show I was shocked to hear another song from “The Queen Is Dead” era, that again was not one of the one of the hits, it was a b-side to the single “Boy with the Thorn in His Side”. it was a song that never received much fanfare. Since I first heard this song in 1986, it has been one of my all-time favorites. It’s called “Rubber Ring”.
The song is about how in our darkest moments, music can be what gets you through. These lyrics are perfect for me. They speak to what I have gone through, am continuing to go through, as well as the importance of these songs and the importance of Morrissey to my journey.
Here’s some of the lyrics that speak as if he’s singing directly to me.
“But don’t forget the songs That made you cry And the songs that saved your life Yes, you’re older now And you’re a clever swine But they were the only ones who ever stood by you
The passing of time Leaves empty lives Waiting to be filled I’m here with the cause I’m holding the torch In the corner of your room Can you hear me? And when you’re dancing and laughing And finally living Hear my voice in your head And think of me kindly“
https://www.youtube.com/watch?v=WH14vch6Mzw
In Phoenix, Morrissey’s first performance of “Rubber Ring” since 2004.
Morrissey first sang these words to us 36 years ago. But back then I couldn’t possibly understand the meaning of these deep lyrics. At that point in time, I hadn’t lived enough life yet. So as a nineteen-year-old, what I loved first about this song was the music and melody. But as a fifty-five year old man that nearly died a few months ago, I can now say…
I haven’t forgotten the songs that made me smile, nor the ones that made me cry, and I certainly have not forgotten those songs that saved my life!
I am older now and yes, a ‘clever swine’. And throughout this life of adversity, and especially during my 53 days in the hospital, there were times where I did feel as if it was the songs that were the only ones who stood by me.
In the corner of my hospital room I could hear you Morrissey, and now that I am dancing and laughing and finally living, I hear your voice in my head and I think of you kindly.
I was shocked that we were witnessing his first performance of this song in almost twenty years, as he last performed it live in 2004.
Perfect words, meaning and perfect timing for me. I’ve always despised the thought that “everything happens for a reason”, but wow…. lately some things have happened in ways that certainly have made me think.
Once the show ended, we were inspired and energized. We stood outside for a while, with our eyes on both the tour bus across the street and on a few people near the backside of the venue. Within several minutes, the crowd had really thinned out. I told Dylan and Ashley that my dream was to meet Morrissey, and I knew exactly what I would say to him.
With realism and a bit of disappointment in my voice, I concluded that we should leave. As we turned toward our car, we were surprised to see that the bus was gone. The sight of that proved that it did make sense to head towards the car.
We drove half a block and turned right at the venue. With excitement we all saw the bus. It hadn’t left, it just moved around the block to the side of the theatre. Excitedly, I parked. We hustled to the sidewalk in front of the bus. Ten people or so were gathered on the sidewalk between the bus and the “stage door”.
After only a few minutes, a lady came and opened the door. She looked at us quickly with a purpose. I said to Dylan and Ashley, “see how she looked at us? He’s coming soon, I’m sure of it….!”
I then said, “I’m ready, I know what I am going to say.”
Ashley responded, “don’t worry about a picture, I have covered whatever is going to happen”.
Within seconds, here he came, with a big bodyguard near his side.
Morrissey leaving the Orpheum Theatre
The bodyguard declared, “no autographs and no pictures. We need to keep moving.” But Morrissey, nearing the bus, did pause to sign a couple of album covers. While he was finishing the second autograph and with his bodyguard between us, we made eye contact.
I then quickly said, “I spent 53 days hospitalized with Covid Pneumonia. While fighting for my life, I listened to your music twenty-four hours a day.”
He continued looking right at me, put his fist to his heart and said, “oh my God”, and then “thank you” while giving me the thumbs up.
Then with him turning towards the bus, I said, “how about a picture?” He started to look back towards me, but his bodyguard quickly scurried him onto the bus.
I was in disbelief that this just happened in the quick way that it did. Walking back to the car I was focusing on the fact that I really wished I had gotten a picture.
As we sat down inside car, Ashley said, “don’t go yet, because I do have a picture, and it’s really good”. My thoughts of a picture with Morrissey had been where we both posed for the camera. But what Ashley got may have been better than that, as it truly captured the moment.
The short drive to drop them off consisted of listening to “Rubber Ring” and genuinely celebrating what had just happened.
Until this week I had wondered what the title of the song “Rubber Ring” meant and how it related to the song. After the show I did some quick research. A “rubber ring” is the life preserver that is thrown into the water when someone is drowning.
Plenty of times I have been drowning, and it was the music and Morrissey that saved me.
They say you should never meet your heroes.
But I did, and I told him exactly what I wanted him to know.
Recently I fought for my life, hospitalized for 53 days. My son Dylan and I have been going to Coachella since he was 11 years old in 2007. Making it to our 11th Coachella was a huge driving goal of mine, training hard for months to make it happen….
I went to from initially fighting with all my might to simply roll over or stand up to gradually getting to the point of daily exercises and timed walks through my neighborhood, with April 22nd at Coachella in mind.
Blessed to have come far, I still struggle considerably with my breath, energy, and endurance.
But there was no way was I going to miss Coachella.
Our trips to the festival each year, shaped and inspired Dylan while he was growing up. He’s now a successful graphic designer and the style of his signature designs are greatly influenced by those days soaking in the sun and music at Coachella.
Dylan’s Desert Cabana on the festival grounds
It’s surreal for me that Dylan is now a two-time headlining artist for TRASHED Coachella, with his trash can “Desert Cabana” at the festival on the polo grounds.
Dylan the artist
I’m so proud of Dylan and I’m so proud of myself. We made it. This accomplishment has got to be my most triumphant feeling yet.
At the festival, I paced myself, knowing my limits.
I chose a few acts that I wanted to see, rather than racing from stage to stage.
At times I’d stand close to the stage for a few songs, then sit comfortably at the ADA platform for the remainder of the set.
I took the special shuttle available for me to get from handicapped parking to the main gate.
We took it slow. I’d come to the polo grounds for 5 or 6 hours per day, rather than the 10 to 12 of years past and I only went Friday and Saturday, skipping Sunday.
I’m blessed that Dylan & his girlfriend Ashley took such good care of me at the festival, while Shelly stayed behind at the motel, taking good care of me the rest of the day. Teamwork!
Dylan, Ashley & I at the beer garden
As far as the music goes, Danny Elfman was the big highlight.
40 years ago in 1982, my first ever concert was Oingo Boingo at the Fox Theatre in Bakersfield.
Danny Elfman retired Oingo Boingo in 1995 and focused on his legendary career as a film & TV score composer.
For 27 years he never performed on stage as himself again, until this Coachella!
With both a 50-piece orchestra and an all-star rock band, he mixed Oingo Boingo songs in between The Simpsons theme, Batman, Spider-Man, Pee-Wee’s Big Adventure, Edward Scissorhands, The Nightmare Before Christmas, etc.
Danny Elfman
It was insane! Danny Elfman and his production absolutely stole the show.
Sure, I still was fighting for my breath, but for an hour I was that Southern California kid again…singing along with my first ever favorite lead singer.
By my side in awe of it all was Dylan and Ashley (they were born the year Danny Elfman had last performed an Oingo Boingo song!).
It all brought some occasional tears from me…as music continues its healing powers.
With much work and motivation to get here, we conquered our 11th Coachella!
Never lose focus of your goals, no matter what they may be.
This past week I went back to my primary care doctor and was surprised to be greeted with so much excitement towards my continued recovery. The nurse told me she thinks of me often because she knew so many that died and I am an example of the outcome that can happen with a positive fight. This made my day as it reminded me of the good that has come from the last four months.
While hospitalized for 53 days, I needed others to help keep me focused with positivity and patience. I turned my situation into an open view of what I was going through with continual posts on social media. Real, raw, positive and many times crazy is how I probably appeared to the many that was watching my daily ups and downs. I needed this, as I don’t know how I would have survived without this modern communication ability.
I turned the solitude and seriousness of my dire struggle for breath and life into a moment in time where I could lean on my wide network of people for strength. The constant communication kept me focused on what a beautiful life I had to fight for.
I’ve been through a lot in life. So much that prior to this recent hospitalization for Covid-19 Pneumonia, I was finishing up my 30 chapter book on my struggles with adversity and my ultimate success with resilience and emotional recovery.
In this recent fight for life, I immediately relied on strength from the battles that I had already won. I wanted to talk and write about the details of those fights as these previous experiences were giving me the confidence I needed in this all out fight to survive.
Today I am just over 19 weeks into a new life where every breath takes work. An effort that reminds me of how fortunate I am to still have an ability to move to the next breath.
In each of my previous life changing chapters, so many important people played a role in getting me through the most difficult days. This recent experience was no different. But it occurs to me that to truly make it through any of my previous adversity, I have always needed to pull inward and make the adjustments within myself in order to move forward.
These recent weeks I am beginning to understand the magnitude of having a ways to go in my healing.
I still struggle in search of an easy breath.
I cough often.
My heart flutters as my breath gets short with what is called hyperventilation.
The brain fog, inability to multi task and my battle to remember things is all new for me.
The fatigue is intense as I struggle to stay awake past 9 PM, often taking a nap in the afternoon.
I lose my voice multiple times a day.
My heart doesn’t feel right, so I will be seeing a cardiologist on Monday.
I am what they term as a long hauler. My doctor explains that nobody knows how long it will last, as this is such a new disease.
I see now as when my real work needs to begin. I must stay positive and active while being in constant synch with the cues my body is sending me.
Now it’s up to me. The way I approach this will have the ultimate effect on my new reality.
I will draw strength from every battle I have won in my life thus far.
I will stay positive.
I will continue to not allow any negativity near me.
I will cherish every moment spent with those I love.
I will eat right and exercise every day.
I will continue to do the things I enjoy most.
I will be patient with my progress.
I will appreciate the things I used to take for granted.
I will continue to be so thankful for being alive.
I can’t quite figure out what just happened, but I am getting there.
I nearly died from coronavirus pneumonia.
My wife, our two sons, their girlfriends and I all met in San Diego for a fantastic Thanksgiving weekend. While there all six of us got sick, but only my wife Shelly and I had symptoms that eventually turned severe. It began as the sniffles. Shelly thought that it may have been a reaction to mold, as the bathroom seemed to have some mold in it.
On Sunday, while driving home Shelly and I both started feeling horrible. We stopped to eat in Yuma. I could barely eat. But I’m tough. I didn’t worry about it, as I’d be alright. But as the week progressed, my symptoms also progressed.
By Thursday I had the worst case of diarrhea I ever had. I struggled to drive to a coronavirus test sight. I pulled up at 10:57 AM. They told me they closed at 11 AM and to hurry as they handed me a cup with a straw in it. They told me to spit in the straw. Simple instructions I thought. But when I went to spit, I had none.
For the next five minutes I scrapped together all the saliva I possible could.
A gentleman then said, “We’re closing now, please give me your cup”.
Saliva barely registered on the bottom of it.
“This tiny amount may be enough, we’ll see. You’ll get results texted to you tonight.”
A text came through twelve hours later. I tested positive.
I barely slept as multiple times an hour I was hurrying to the bathroom. It was the worst flu like symptoms I could ever remember.
But the next morning as I got up from bed, I struggled to catch my breath. This was odd, I thought. But I honestly didn’t put much more thought into it. I had work to do and I needed to get to it.
It just so happened that I got a text from someone I worked with. Dom was my branch manager, but had also become a friend. The text wasn’t work related, it was a continuation of our discussion of our favorite TV show, Curb Your Enthusiasm. I mentioned to Dom that I had just tested positive. He had just recovered from the virus and had some complications with it.
“How’s your breathing?”
“I’m actually struggling to breathe,” I responded.
“What’s your oxygen level?” he asked.
“I have no idea what that even means,” I responded.
He said he’d get an oxygen pulse meter to my house quickly. Within 15 minutes one was dropped at my door by Lyndi, a teammate that lived a couple miles from me.
Shelly grabbed it from the doormat and we promptly figured out how to operate it. The result was a 93 pulse rate and a 73% oxygen level.
Neither of us had any idea what that meant. I texted Dom that my oxygen was at 73. He said that wasn’t possible. I sent a picture proving it. He immediately called and with much animation in his voice, he said to get to the hospital as soon as possible.
I still didn’t understand the magnitude of what a 73% oxygen level meant. Besides, I still had some work to finish. It was the final day of open enrollment for an employment benefit I wanted to take part in. The email instructions were vague, so I called the support line of the financial services company that was handling the benefit.
I struggled to talk through grasping for breaths while completing the open enrollment on the phone with a nice, patient lady in Florida. It took us at least thirty minutes to get all set up. When finished I laughed and told the lady I was now heading to the hospital.
I had no clue of the seriousness or urgency to the situation. But by this point I was struggling enough that I allowed Shelly to drive, which was very rare.
We stopped at the urgent care near our house. I went inside and fought to get the words out that I was struggling to breathe. The lady at the counter immediately said,
“We can’t help, but get to the hospital NOW!”
Getting back to the car, Shelly made a split second decision and started driving to a nearby small hospital with an emergency room. This facility had opened in our town within the last year. It was five miles away, which was the same approximate distance of two large hospitals in neighboring towns. We both had a gut feeling that this smaller facility would give me the quick attention that I needed. A decision as simple as this may have saved my life.
Entering the door, I was immediately greeted by a friendly lady that told me not to worry about talking. Within seconds, a nurse placed another oxygen meter on my finger. It also said 73.
“Come with us,” the nurse said.
“What about these people waiting?” I laughed.
“At a 73 oxygen, you get to the front of the line.”
Shelly hadn’t even parked the car yet, and I already had oxygen placed over my nose to help me breathe. From here several nurses and a doctor kept rotating into my room, asking the same general questions about my health.
I asked the doctor what he thought about my situation.
He proceeded to tell me that I had pneumonia connected to the coronavirus. That I was fortunate to come in when I did, because without the aid of supplemental oxygen, it wouldn’t have taken me very long to suffocate to death. He described how the upcoming days would be crucial in determining my longer term prognosis.
That’s when the seriousness of my situation started to become clear to me. Up until then I thought that I would get treated with some medicine and be good to go home within a few hours.
I didn’t want to alarm Shelly or the rest of my family with the severity of my situation. These were strange times, as Shelly couldn’t be in the room with me due to coronavirus protocols. So the conversations with the doctor and nurses were just between me and them.
Shelly called me from the waiting room. I told her I would most likely be in overnight and asked her to go home and grab a few items for me. I kept thinking about my laptop computer, as I had work that needed to get done.
Shelly brought those items to me and then went home. I was worried about her, as she was also sick from the virus. But my biggest concern was the fact that she has a traumatic brain injury from a freak accident nine years ago, so I have been her caregiver ever since. There’s many things that she no longer can do on her own, so my mind was focused on getting well quickly so I could get back home and take care of her.
That evening reality became clearer as I struggled with all of my might to breathe. That’s when I met Dr Kelli.
Dr Kelli was a personable, caring type provider that I hit it off with right away. She explained that I was very sick. That I needed more supplemental oxygen than most people that she sees. Apparently my type 2 diabetes had added to my issues. She explained that I needed to put my focus on following their instructions and fighting hard not to give up. She needed me to stay positive.
As I struggled with my breath, I managed to tell her a little about myself. I gave her a quick synopsis of what I had been through in my life. Losing my fiancé at a young age. Struggling for years and then falling in love and marrying a trusted and valued friend, which alienated people close to us. Climbing to the top of the grocery world, only to lose it all due to my hard ass ways. With that, millions of dollars were lost. Then rising in the mortgage business, only to lose everything in the crash. I proceeded to explain that things got so bad I secretly drove a cab overnight through the rough streets of Phoenix. This changed me into a more empathetic human. For work, we left Phoenix for Jackson Hole, Wyoming. The reinvented me became the popular local grocer and I created a radio show with my son. Then life came crashing down again with Shelly’s brain injury.
I told Dr Kelli that I began writing about my journey and that it was helping me and others. My story is a story of resilience, and this is just another chapter in it. I explained that I would be positive, patient and fearless. And that I would not allow any negativity to enter these four walls. Dr Kelli beamed with a wide smile and said, “I love this! You do have the attitude needed to beat this.”
By over hearing conversations and watching expressions, it didn’t take long for me to understand that I was in a complete fight for my life. But I wouldn’t discuss that with anyone, as that was the negativity I was avoiding. Besides, I did not want Shelly or Dylan and Taylor to worry more than they already were.
To keep from being put on a ventilator, I was put on the most high-powered high-flow oxygen machine at 60 liters per minute. I could not stand up, nor roll over without assistance. Every breath felt like I was digging deep to breathe after a mile sprint. Often times I likened it to what drowning must feel like.
I could have easily gotten scared or negative. But what was I scared of? I had lived an amazing life full of enough ups and downs to cover several lives. If my life was about to end, so be it. It had been a good life. My only concern was that I didn’t want to leave my family to deal with life without me. I also recognized that I had a lot more life to live with many people to help and more of a positive impact to be made. So I told myself that I had a lot to live for and that my fight could be a positive example for other people facing a similar fight.
From that point forward my focus was to be patient and to preach positivity. I knew there would be people helped and inspired as well as it being my driver for moving forward with purpose.
Music has always been a tremendous part of my being. I gather such clarity and hope from it. On my first night at the hospital I listened to a podcast. Halfway through I realized that I didn’t need that kind of noise from the outside. I turned it off and turned on The Smiths through Spotify. I listened to their entire catalog of songs over the next several hours. I was calm, confident, and focused. I realized to get to the other side of this I needed music by my side twenty-four hours a day.
I started calling my hospital room the “Happy House” after the upbeat song by goth legends Siouxsie and The Banshees. I played that song often and loudly, drawing much inspiration and positivity from this and so many other songs.
That same day I reached out on social media with a short, positive but serious account of what I going through. From that moment forward I began openly sharing the roller coaster of my journey.
The following night my football team, the Arizona Cardinals, were on Monday Night Football. They had the momentum throughout the season to make a run deep into the playoffs. I was excited to see them on the television. I told my nurse that I would only turn off the music and turn on the TV when the Cardinals were playing. The game was awful, as the Cardinals were embarrassed by the Rams. I turned the TV off, cleared my mind of the negativity of the game and I vowed never to turn the TV on again while hospitalized. It truly would be music 24/7.
This focus on positivity and music began serving me well. I was inspiring the medical staff and they were inspiring me. My positive focus centered on kindness and appreciation towards the medical team. This positive energy began feeding off itself; creating a momentum of hope that’s hard to describe.
I was an extremely sick man. But I focused my energy on the small improvements daily. Ever so slight, these improvements became a challenge within myself. The staff was highly encouraged to be able to gently lower my high flow oxygen level sooner than expected.
Our youngest son Taylor and his girlfriend Michelle took time off of work to come home to help take care of Shelly. Taylor had moved to California the previous year. The timing of their help was vital for Shelly. I am so grateful they were able to get here when they did.
Taylor dropped off a container of dates and energy bars to the front desk. It was five days in and so far the most substantial food I had eaten was Sugar Free Jello. It was good to be able to eat something familiar, healthy and of substance. After being hospitalized for a full week, I was able to order solid food from the hospital kitchen. Chicken nuggets and chicken noodle soup sounded good, and it was great to muster the endurance to eat a close to normal meal. It took nearly an hour to finish eating, as it took so much more strength than what I currently had. But most importantly it was a positive milestone to draw much gratitude from. The two chefs were so kind to me. My interactions where I fought hard to speak through the hospital phone with Sherri and Daniel in the kitchen became a highlight of each day.
That same day I ate my first meal, Taylor and Michelle brought some more healthy snacks. Taylor called me on my cell phone and said that he wanted to find my window. I was not much help, as I had no perception of where my room was. At that point, I didn’t even realize my room was on the first and only floor of the tiny eight bed hospital. Within a few minutes they found my window.
The sight of the two of them smiling made my day and brought me to tears.
From there the window visits began. Friends and family found my window on what became a daily basis. It brought us all hope and a smile, as I posted each photo to social media.
My Jackson Hole, Wyoming friends took the window visit a step further as they went to St John’s Hospital in Jackson and had a picture taken of them bundled up on the outside through a hospital window. I was crying multiple times daily, but the sight of this brought me deeper tears than any time yet.
I was continual blown away by the kindness towards me that I was seeing near and far. People that I least expected to grow close to were closely bonding with me. From Jack, my local accident attorney to Craig, a friend that I had limited contact with since the 1980’s. These are a couple of examples of deep friendships cemented, but there are many more examples such as these.
Often there’s not an understanding of how much of an impact we’ve have made on people until we are gone from this world. But I was blessed to see that countless people from all times and aspects of my life cared. This was a huge moment of clarity and inspiration for me.
In those early days I began having vividly real conversations with deceased family and those close to me that had died, as well as a conversation with God. The talks were specific and incredibly deep. Where’d this come from? Delusions? Hallucinations? Or near death experience? Whatever it was, these conversations helped me a lot. I gained clarity and perspective that added to my already deeper understanding of life. It was an incredible tool to be equipped with in my fight for life and it will be an incredible tool I will find energy and wisdom from for the rest of my life. I am still processing and understanding much of this, but I truly look forward to diving deeper into this in the next book that I write.
The music was getting louder and more diverse. What began as a focused dive into my musical roots was now expanding into bands I had been curious about but never had gotten much into. Sonic Youth was a band that I dove into on my eighth day. By time the day was over I was convinced Sonic Youth would be a band on heavy rotation for the rest of my life; and so far it has been.
Each day I’d write and post about my song of the day. It would be a song that was relatable to my current circumstance. My discussion about the lyrics was too deep for most, but my music friends got it I thrived off of that. It gave me a needed purpose at a time where I needed my mind occupied. I channeled my radio persona from my radio show that I did for five years with my son Dylan, The Hole Enchilada on KHOL 89.1 FM Jackson Hole Community Radio.
This got me through extremely difficult days. I focused on the music rather than the fact that there was sizable worry that I might not make it to the next day. My music friends throughout the world came up huge, by sending me Spotify song playlists that often times were closely allied with my tastes. But I also appreciated the playlists and suggestions from many that were far from my musical wheel house. Because of this, my musical tastes expanded greatly at a time I needed intriguing things to think about. Dylan, my oldest son that shares my passion for music, and his girlfriend Ashley stayed extremely close by sending me so much music and having conversations with mostly music as the subject throughout all hours of the day.
While in the hospital any progress made was recognized. I kept everyone upbeat with fun and humor. This focus went so far in getting me through each day. My overnight nurse, Janet was an absolute saint. We celebrated the smallest steps; an example being one night on my own, I got up and took two steps to the bedside commode. Another night, with walking help from Janet, I was able to take a few steps to the sink and brush my teeth on my own. I focused on the positive of what was accomplished, rather than the reality of how basic, elementary and what a struggle each new task was.
The hospital was such a safe and controlled environment. I was being monitored around the clock. I rarely slept, but when I did, if I rolled over and my oxygen came off, within seconds Janet would be in my room to safely get it back in place. If my oxygen level suddenly plummeted at any hour of the day, a nurse would immediately be there to investigate why.
With my medical team’s tireless effort and my positive determination, I was improving slightly each day. Although I was often reminded that things could quickly and dangerously plummet south. Dr Kelli would often say, “We are not out of the woods yet.”
Not only was I on a lot of oxygen, I was on a lot of drugs. For one stretch in particular, around Christmas, I was on Prednisone. This was to aggressively clear infection in my lungs, but a side effect put me closer towards temporary insanity. I said and posted things at times that didn’t make much sense. Although in my racing mind, it made perfect sense. I knew that I was wearing on many people, but I frankly didn’t care, as it was also a survival tactic for me as I was staying occupied rather than going down the rabbit hole of fear, isolation, negativity and depression. I lost some people with my trip towards insanity during this time, but countless people stayed right there with me and helped pull me through. They say this is not only a virus of the lungs, but also a virus of the brain. These are subjects I look forward to digging deeper into in my next book.
I was surprised on my 16th day of hospitalization when a doctor came into my room and said, we need to talk about discharging you soon. Sure, I had improved and was now on ten liters of oxygen per minute, but who were we kidding? I had a long ways to go.
“Where will I go?” I asked.
“Possibly home,” the doctor said.
This alarmed me as Shelly was still healing from her fight with the virus and I was her caregiver, there’s no way she could be mine. I explained this to the doctor and asked her to please read the article about Shelly’s brain injury.
Later in the day she stopped by, told me she read the article and totally agreed. They’d work on getting me into a rehabilitation facility within a reasonable drive from home, as Shelly could not drive very far due to her brain injury. Being in the positive frame of mind I was in, I took this in stride with a feeling of achievement and excitement. Talking to both Dr Kelli and Nurse Janet, they assured me that I’d be fine and under good, closely monitored care.
Nineteen days into my stay, on December 22, 2021 I was discharged to the care of what is classified as a post acute and rehabilitation facility, which was less than 8 miles from our house. Although I was still fighting hard with every single breath, I had no concern with what was next as I knew I’d turn it into a positive. I was released with cheers and excitement from the hospital staff that I had bonded so well with. I videoed it all and triumphantly posted to social media. But with excitement for change, I had no idea what kind of evening I was in for.
https://www.youtube.com/watch?v=CsuebA10euQ
The facility was on an intersection that I regularly drove past. It was old and not appearing to be very well kept. Immediately I felt like I wasn’t receiving enough oxygen, but I struggled to get anyone to look into this. I had just tested negative for the virus, so I could now have visitors. Shelly came by and we both had an uneasy feeling.
Dinner came and it was unbelievably bad. It’s what I imagined prison food to look like. In addition to its poor looking quality it was all carbs and sweets. I told the nurse’s assistant that I was diabetic and needed the diabetic meal. She abruptly told me there was no other option. After pushback she brought me a ham sandwich, a bag of gold fish crackers, a cookie and apple juice. Again, nothing I could eat. I reached for my bag of healthy treats and thankfully was able to eat two Kind protein bars and drink a bottle of Glucerna for dinner.
Later in the evening my roommate started yelling for help. I asked him what was wrong and he said he was in a lot of pain and needed a nurse. I rang my help buzzer, as he had done several minutes earlier. Nobody came. He started yelling for help, I joined in with hollering “nurse!” and “help”. As time went on we yelled louder, as I was struggling with my breath due to what felt like inadequate oxygen and I was now out of water.
To make a long story not as long, it took over an hour to get help. I was horrified after receiving such good care at the hospital. After providing care to my roommate, I was told my oxygen was fine. I asked about my medication and was told it would take a few days to get transferred. Again, I was horrified. Then I looked down and saw a human toe nail on my bed. Already in survival mode, I kicked it up a notch. I knew I needed to get out of this place fast.
Determined not to sleep, I started by calling Vik, my best friend from college who now lived in Switzerland. We talked for a few hours as he kept me calm into the early hours of the morning. I explained to him that I would not sleep, because if I did sleep and lose my oxygen connection, nobody would come to assist and I could die.
I spent the night on the phone with eight different people. This included early rising old grocery industry friends on the east coast as well as our neighbor Robin and Shelly’s best friend, Wendy. I’ll never forget how those people got me through that night. As the night went on I was convinced I needed out of this facility immediately.
The next morning the nurse and nurse’s assistant both connected with me through our shared love of music, reggae in particular. I felt some relief as I realized that if I could get food delivered to me by friends and family daily, I could stay positive and survive this situation. The last thing I wanted was to move somewhere that was too far for Shelly to drive. So I quickly put the halt on moving me someplace else.
What was toughest for me during this time was my concern for Shelly. I tried to lead and be a caregiver from my hospital bed. But most of the time I couldn’t get people to understand what help she needed and I made her extremely uncomfortable with my attention to the subject. Thank goodness for her best friend Wendy. Without her, I am not sure what we would have done.
Every single day I had company, as people were coming from all over town at all hours of the day to see me. Many times they brought food, keeping me from having to eat the awful facility food. Sometimes they came inside to my room. Other times they came to the window, which I had my bed pushed up against. Although the window would only open a few inches, it was enough to feel the breeze and talk to my visitors through.
I spent 34 days in this facility. At first glance, there is not much positive to see here. It felt like the type of place the elderly go to die. But I kept the mood fun and stayed positive with the allies that I made. I used my positivity to have great relationships with the nurses, certified nurse’s assistants, physical therapy staff and my roommates. I stayed positive by focusing on being kind and sharing my story. Early in my stay here I began videotaping short messages of my progress, and my mindset each day. I posted them first thing each morning. It chronicled my improvement as well as my challenges. It was real, it was raw and it provided hope.
I also began videotaping my physical therapy sessions, which began as simply standing up and moved to a walk to the window, then the door and back and then eventually walking to my bathroom. I hadn’t visited the bathroom in my room since the day early in my stay that I tried going in there by myself and my oxygen level dropped to 52% as I approached the sink. It took complete focus and proper breathing to fearlessly get my level up into the 60’s as I walked toward the door. Within minutes I had myself back to 90%. I was told the 50’s was extremely dangerous and could result in brain damage or death. I made sure not to drop that low again, although I often would dip into the 60’s, while my heart rate would skyrocket towards 150. For perspective one of my mountain climbing friends told me that 70% was the equivalent to climbing on Mt Everest.
Eventually I moved to walking from my room to down the hall. Then one day my incredible physical therapists, Tina and Jason, wheeled me outside for a triumphant walk through the grass. I captured the progress daily on video.
I managed to keep myself clean despite not having a shower for 55 days, as I was far from having the strength or breathing ability for such a physically taxing task.
I eventually was released after 34 days in the rehab facility, for a total of 53 days in a hospital bed. I never was alone as I connected daily with so many people that were rooting for me. This connection was a big reason for my survival.
The food never did get better. Shelly visited everyday and brought Greek yogurt they kept in the kitchen refrigerator for me to eat each morning. I continued to aggressively use my leadership skills asking friends, family and Shelly to bring me a meal each day. I’d eat half and then have leftovers stored in the refrigerator for a second meal. I weighed 180 pounds when I was originally admitted to the hospital. I got all the way down to 159 pounds as I lost all of my muscle and struggled for the energy to even chew. I have now built myself back up to 173 pounds.
But my ability to survive in the way that I did doesn’t surprise me, as I had proven to myself what my resilience was all about in years past. But I did have to dig deep and pull the positivity from those prior experiences and stay connected to my friends and family; never allowing myself to feel depressed or alone.
I connected closely with my roommate Glynn. He moved in two weeks or so into my stay at the rehab facility. Up until then, I only had a couple of nights sharing my room. Rather than stressing over the fact that I’d have to turn the music down and possibly deal with television noise from across the room again, I instead looked forward to making a new friend. Fast friends we became. Glynn is a polite older gentleman from the deep southern part of Georgia. Exactly who you would picture as a “southern gentleman”. We became each other’s top cheerleader as we constantly joked while fighting for our life. Our nurses loved coming into our room as we were always positive, having fun and playing music. Glynn loves country music, so we had a blast playing country classics from Patsy Cline to Merle Haggard literally all twenty four hours of the day. I’m blessed to have met Glynn. We have a bond that only the two of us will ever understand. He is still not well, so we’ve gone to visit him twice in the past few weeks at two different health care facilities. I pray for him daily.
The emergence of so many unexpected, caring friends doesn’t surprise me, as with each previous life changing bout with adversity new close friends emerged where least expected. Those that disappeared also aren’t a surprise, as I have seen this take place through every previous major life challenge. As unfortunate as that is, it’s part of life. I will not blame myself nor others for the fact that not everyone is comfortable with such vulnerable, real and raw communication. It’s clear that some won’t be able to let go of their vision of me spiraling towards losing my mind, while others draw inspiration, perspective and hope from that same highly visible fight.
Devin, my very best friend, has continued to reach out to me every single day throughout this saga. The depth of his patience, wisdom and care towards me is unbelievable, as his steady commitment to my well-being has been a constant for over thirty years now.
I am blessed indeed.
New observations and revelations from my experience emerge daily. What is clear thus far is that this strongly reiterated what had already been proven to myself in my story of resilience. It continued telling me that whatever gets thrown my way, I will undoubtedly find a way to the other side. With each new chapter of my life, the clarity of the benefits of a life centered on positivity and gratitude becomes even clearer.
Also becoming evident to me more than ever is that most things are not a very big deal. When there is an issue; I just simply observe, put some thought into it and come up with a solution. It then becomes quickly resolved so I can put it behind me and move on with positivity to the next day.
I’ve now been out of the rehab facility for eight weeks. The first 9 days I went and stayed with our neighbors and good friends, Bill & Gwynn. The kindness of their offer was mind blowing, as I wasn’t quite ready yet to go home to Shelly. Again, she is not able to be my caregiver, so it was perfect to be able to ease into my arrival home. I worked hard, gained strength and eventually made it home, where I quickly mastered the stairs of our two-story home.
The progress has really been encouraging. I’ve worked hard with my home health physical therapist, Austin. He has given me exercises that I work on every day to build strength. I am still easily tired, needing far more sleep than ever. But I am improving every day. I am now almost completely off of supplemental oxygen. But it’s a true balancing act as I work hard, but also try to make sure I don’t overdo it. Somedays I do better with this than others.
I am ever so thankful for the sun! That is something I really missed in my 53 days inside. I cherish everyday spent at home with Shelly and our two pups, Molly and Dino. I still have a ways to go as I tire easily, cough often and still have an issue where I hyperventilate and struggle with my voice. The days start well, as I return to some normalcy, writing early in the morning at my favorite outside table at Sunsational Coffee. Though by evening the fatigue is intense, as is the cough and hyperventilation. But there is progress.
I’m still Shelly’s caregiver. But as much as I didn’t want this to happen, she has also become my caregiver in certain ways. Reality is that can’t do some of the things that I could do before. But the silver lining of this is that we’ve become the clearest picture of teamwork that I have ever seen.
Progress is a beautiful thing as I keep being patient, positive and so grateful to be alive!
I’m currently working on a piece that discusses the highs and lows of my 53 days away from home.
In the meantime, I thought I’d share a few short videos of my recent release and “jailbreak” toward home.
Out of the room & moving down the hall….
My wife, Shelly, pushing me towards the “fresh air”!
Next, my mom drove me back to my neighborhood due to the PTSD from my wife’s Traumatic Brain Injury (TBI).
Appreciating my MOM driving me to my neighborhood!
Below is a typically beautiful Arizona sunset, with a couple of F-35’s heading towards the runway at Luke Air Force base. We in the neighborhood call it “The Sound of Freedom”.
A beautiful Arizona Sunset with the Luke Air Force Base F-35’s heading towards landing.